ulukinatme
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No words can effectively soften this blow, but don't look to blame yourself. Things happen, all you can do is look back at the extra time you were given because I'm guessing without the tube she would have been gone sooner.I’m sorry for dragging this down but I’m too deep to breathe and I just need to know I’m not alone.
I lost my wife yesterday morning to ALS.
I’ve been trying to think of how to form my words, but I’m at a loss. I (39 M) lost my wife (39 F) yesterday morning at around 3 a.m. to ALS. Her tracheostomy tubing got disconnected somehow overnight and I wasn’t able to hear the alarm fast enough to do anything about it. She was gone before I could even try and save her. I don’t know how it happened - I’ve replayed it a billion times so I could blame myself and I can’t think of anything I missed.
My whole world is over. I knew ALS would take her from me eventually, but not like this. Not because I couldn’t keep her safe. I failed the most important person in the world and I’m not sure how I can go forward from here.
So umm … I don’t know. I just needed to get these words out of my head.
My wife worked in home health for many years when we were first married. One of the patients she looked after the longest was an elderly woman who was a quadriplegic, brought on by a flu shot that triggered her Guillain-Barre syndrome. That woman also relied on a tube, and because my wife tended to her the longest she often trained new nurses on how to take care of the woman on the shifts she wasn't covering. After a number of years a new nurse had the tube fail and she wasn't able to correct it in time, the woman passed. My wife blamed herself for awhile, the grief of losing a patient and family she had grown close to as a friend weighed on her greatly. Ultimately they found it was a freak situation that couldn't be prepared for, there's nothing she could have really done to help that nurse out prior.
You did not fail your wife. You took care of her till the very end. She's now in a better place where she no longer has to fight and struggle with such a terrible condition. I'm so sorry for your loss, I'm praying for you and your family at this time.